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Comparative issues in the governance of research biobanks : property, privacy, intellectual property, and the role of technology
서명 / 저자 Comparative issues in the governance of research biobanks : property, privacy, intellectual property, and the role of technology / Giovanni Pascuzzi, Umberto Izzo, Matteo Macilotti, editors.
저자명 Pascuzzi, Giovanni. ; Izzo, Umberto. ; Macilotti, Matteo.
발행사항 Berlin ; New York : Springer, c2013.

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00023590

소장위치 / 청구기호

5층 인문·사회자료실 / K3611.H86 C66 2013

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청구기호 K3611.H86 C66 2013
형태사항 viii, 339 p. : ill. ; 25 cm.
언어 English
서지주기 Includes bibliographical references and index.
내용 Property and Privacy in Biobanking -- Research Biobanks Meet Synthetic Biology: Autonomy and Ownership / Stephen R. Munzer -- Regulating Biobanks: Another Triple Bottom Line / Roger Brownsword -- Health Insurance, Employment, and the Human Genome: Genetic Discrimination and Biobanks in the United States / Eric A. Feldman, Chelsea Darnell -- Ownership of Biomedical Information in Biobanks / Naomi Hawkins, Nadja Kanellopoulou, Jane Kaye, Karen Melham, Paula Boddington -- Human Tissues in the "Public Space": Beyond the Property/Privacy Dichotomy / Mariachiara Tallacchini -- Should Privacy Be Abolished in Genetics and Biobanking? / Amedeo Santosuosso -- Biobanks and Electronic Health Records: Open Issues / Paolo Guarda -- Informed Consent and Research Biobanks: A Challenge in Three Dimensions / Matteo Macilotti -- Intellectual Property and Biobanks -- The Challenges of Achieving Open Source Sharing of Biobank Data / Donna M. Gitter -- Beyond Open Source: Patents, Biobanks and Sharing / E. Richard Gold, Dianne Nicol -- Opening Research Biobanks: An Overview / Roberto Caso, Rossana Ducato -- The Roles of Material Transfer Agreements in Genetics Databases and Bio-Banks / Thomas Margoni -- Quasi-Patents and Semi-Patents in Biobanking / Gideon Parchomovsky, Michael Mattioli -- Accessing Accessions: Biobanks and Benefit-Sharing / Mark Perry -- Conveying Information, Generating Trust: The Role of Certifications in Biobanking / Matteo Ferrari -- Biobanks: The Perspective of Biobanker's -- Scientific and Managerial Premises and Unresolved Issues in Tumour Biobanking Activities / Mattia Barbareschi, Silvia Fasanella, Chiara Cantaloni, Silvia Giuliani -- The Italian Prototype Networks of Research Biobanks / Giuliano D'Agnolo, Elena Bravo -- Governance of Biobanks for Cancer Research: Proposal for a Material Transfer Agreement / Barbara Parodi, Paola Visconti, Tiziana Ruzzon, Mauro Truini.
주제 Biobanks --Law and legislation.
Biology --Research --Law and legislation.
ISBN 9783642331152 (hbk.) :, 3642331157 , 9781299336704 , 1299336701 , 9783642331169 (electronic bk.) , 3642331165 (electronic bk.)
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